09 May 2012

Juvenile Idiopathic Osteoporosis

For 4 years, 15 year old Alysha Loffler has not been able to hug her mum, due to the shear pain inflicted on her body. She lives in constant pain day in and day out, and is borne by a fear that she could break a bone from the simplest task. She has lost count of the number of bones she has broken. Fracturing a bone from a hand shake. Snapping two bones from a cartwheel. And countless of breaks to her fingers and toes. Full body scans revealed she had broken her T6 (a thoracic spinal nerve), and yet she is miraculously still walking. This incredibly inspiring girl suffers from a rare condition known as Juvenile Idiopathic Osteoporosis, a bone density disease which puts her at risk of breaking bones all of the time.
In the past 10 months Alysha’s 12 year old brother, Jared, has suffered two an unexplained fractures, one to his leg while running and one recently to his foot. The family fear that he may also suffer from the same condition.
As Arthritis & Osteoporosis WA’s ambassador, Alysha has been actively advocating the importance to change the public’s perception that arthritis & osteoporosis are diseases of the elderly. She aims to inspire people to support a cause where ignorance and judgement often lies, with people believing all cases of these diseases are self-inflicted, due to poor diet or lack of exercise.
Alysha is striving to become a medical research scientist to seek cures for the many rare conditions that slip through the cracks due to a lack of funding.

I was surprised to find out that this condition not only affects elderly people but also young children so your entry fee of $15 per image will go straight to Arthritis & Osteoporosis which raises money for research and also supports the families with this disabling condition.

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