|Amber and Rachael both have EDS|
Meet the two men whose names are attached to this syndrome (= things that run together). Edvard Lauritz Ehlers [1863-1937] was a Danish-born dermatologist who presented a patient with lax skin to the Paris Society of Syphilology and Dermatology in 1899. In 1908, Henri-Alexandre Danlos [1844-1932] drew attention to the extensibility and fragility of the skin. In 1936 Frederick Parkes-Weber [1863-1962], an English dermatologist, recommended that this group of rare genetically-determined disorders of collagen formation be known as Ehlers-Danlos Syndrome.
|Rachael and her Mum|
In Russia, the disorder carries the name Chernogubow Syndrome, after Alexandr Nicolaevich Chernogubow. In 1892 he presented two cases to the Moscow Dermatological and Venereologic Society.
EDS is best known for loose-jointedness, hyperextensile skin and easy bruising, but there are many other ramifications, including frequent joint dislocations and chronic Pain. Six types of the disorder have been identified.